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Rain's Personal Story

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I come from a healthy family.  The first time I seen a Doctor about my heart I was 24 years old. At that time my heart was just beating weird.  I seen a family physician who ordered an echo.  The echo confirmed I had a heart murmur, but the Dr. said lots of people have heart murmurs and never even know it.  He said, “just have another echo in five years”.  The next time I had an echo I was 32, at this time my heart was doing that "fluttering" thing every once in awhile.  The Dr. said, “you may need surgery when you’re older”.  Aug.1998 I had a chest x-ray that showed my heart was enlarged, but the Dr. still didn’t seem concerned.  In Aug. 1999 I had another chest x-ray and an echo done.  The heart was even more enlarged on this x-ray.  The echo also confirmed the enlarged heart, with mitral regurgitation and atrial fib.  At this point I was tired all the time, and my heart seemed to always be beating like crazy.  I finally went to a cardiologist in January, 2000.  This is the first time I’d seen a cardiologist in my life, which I now know was a big mistake.  The cardiologist said you need surgery immediately, but your heart would not survive the operation at this point, we have to put you on medication for six months.  That would make the operation in July 2000.  He put me on five types of medication... Coreg, Spirolactone, Coumadin, Zestril and Lanoxin.  Up to this point I had been taking no medication, so that in itself was a little scary.

I stopped drinking alcohol and caffeine, which in turn made me sleep better.  I was feeling much better over all on the next visit.  On that visit I had another echo done.  After reviewing the echo he said, "I think you need to have the surgery in April".  That was very shocking to me, I cried all the way home (alone) in a snowstorm.  The next visit he said we need to schedule you for surgery.  WHAT?!!  This all happened so fast.  Next thing I know the Doctors are calling me from Denver wanting to schedule an appointment.

April 3, 2000 I went to Denver, first I had an angio-gram, they told me this was to see if my arteries were okay.  They wanted to know ahead of time if they needed to do a by-pass at the same time they replaced the valve.  I was scheduled for surgery the next morning, so I spent the night in the hospital, had the anti-bacterial showers, got shaved, all that stuff.  The surgery was scheduled for 8:00 A. M. the next morning.  I’m all ready to go to O. R. and at 7:30 the nurse comes in and tells me there has been an emergency.  Your surgeon had to do someone else first.” What?!!

I think you have to have had this surgery to know what it takes to mentally prepare yourself for it. They said he could do me after he finished the one he was doing, but I said no thanks.  I’ll wait until tomorrow.  So I went back to the hotel with my husband rather than stay in the hospital that night.

The next morning I was at the hospital at 5:30.  By the time they were done with all the preparations and wheeled me down to the holding area it was about 7:30.  My husband and I had  watched a 20/20 show about surgeons doing the wrong procedures on people, or doing the left knee instead of the right one etc on television the night before.  They told how some people were writing on their bodies what needed operated on to assure the proper procedure was done on them.  The nurses in the holding area had watched the same program so we had a good time laughing about how I should write "mitral valve" on my breasts.  On his way in to get ready for the surgery the anesthesiologist came by and introduced himself, when I seen his cowboy boots I knew I’d be okay.  :)

At 8:00 I was wheeled down that long hallway to OR.  That was a trip I’ll never forget, a million things went through my mind during that short trip.  Thank goodness my favorite cowboy put me right to sleep.  9:00 they told my husband they’d started cutting, 10:00 that I’m on the heart & lung machine, 11:00 the mechanical valve is being sewn in, 12:00 I’m off the heart & lung machine and the mechanical valve is beating on it’s own & they didn’t have to repair the tricuspid, 1:00 I’m all sewn up and should be in ICU soon.  I woke up just as they were wheeling me into ICU.  All the hoses were out of my mouth and my hands were free.  Wait a minute... I remember them pulling warm blankets out of an oven kinda thing and putting them over me, before they took me to ICU.  That sure felt nice. :) And hearing them talking about my blood pressure......  okay... I guess I woke up before I got to ICU... that’s all a little confusing.

I was sooooooo thirsty! They said I couldn’t have water for five hours!!  They let me have ice chips instead.  They said my stomach was not ready to accept the water and I would be throwing it right back up.  They assured me that would be a really, really bad thing.  My oldest son got there shortly after I got to ICU.  He’s wrestled all his life and knows all about being thirsty...  He slipped me extra ice chips when the nurse wasn’t looking. :)  I’ve never been so thirsty in my life.

 

After 24 hours they moved me down to the cardiac floor.  They kept telling me to eat and wanted to give me pills to make me hungry.  I didn’t take them, but did force myself to eat.  I had to have a couple more units of blood and humongous potassium pills, coumadin, pain pills, sleeping pills, lots of pills.  I asked them what the pills were each time they gave them to me and what they were putting in my IV.  Not that I’m paranoid, I just wanted to know.  After the first day I stopped taking the sleeping pills and about half the pain pills.  The Dr. didn’t care, I was doing fine.  The very last day I found out that if I’d have told them I didn’t want to smoke that crazy pipe in the middle of the night, it would have been okay.  Oh well, it was probably good for me.  My oldest son a college freshman at CSU came over to see me as often as he could.  I also had his Dad, my husband, there with me during the day.  After five days I was released and on my way home.  We took two days to get here. (an 8 hr. drive) My younger son, a junior in high school, helped my Mom out with my 6 year old daughter while I was gone.  Fantastic kids, I won’t bore you with how proud I am of them, or how all three of them are straight A students, the boys are eagle scouts stuff like that.

I’m still on lanoxin, Toprol, coumadin, baby aspirin and a multi-vitamin. I’m still in atrial fibrillation, and probably always will be.  Since the surgery and being on the medicine, it’s not nearly as annoying as it used to be.  And I can hear my valve, sometimes it seems really loud and other times I can hardly hear it.  That part doesn’t bother me.

Heart surgery changed my life in a lot of ways.  It’s nice to find people who have had the same experiences and are willing to share them with others.

Dr. John Propp, a most awesome surgeon, replaced my mitral valve with St. Jude mechanical valve in Denver, CO on 4-6-00.

Rain


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