Hi, my name is Brad
Nowak. I was born on May 29, 1982 in Hamilton, Ontario,
although I grew up and currently live in Cambridge, Ontario.
I have a twin brother, Scott, and an older brother, Craig.
Scott and I are fraternal twins and I was the smaller one at
birth - just under 5 lb. while Scott was almost 8 lb. Life
was fairly uneventful health-wise up until about age 15.
Like many Canadian boys, I thrived on playing hockey and
eventually reached the AAA level during my two bantam years.
Being a goaltender, I was often called upon to go for long
stretches without rest. While I thought I was in good
physical shape, each year I seemed to be a little more tired
after each workout. My mother noticed this first and took me
to the doctor for a checkup. They told me that I had a slight
heart irregularity and should go for an echo. The results
pointed to a bicuspid aortic valve which they said would
probably need to be replaced when I was in my 30's or 40's.
Every six months thereafter I went for another checkup and
each time my heart was larger than the previous visit, so they
kept moving up the surgery date. In January of 1999, my heart
condition was downgraded from medium to severe and they said I
should not wait much longer for the surgery – my heart was now
30% larger than a full grown adult heart. My twin brother has
no heart problems.
I met Dr. Tirone David at Toronto Hospital for the first
time. He is a world renowned heart surgeon who has pioneered
new artificial heart valves. People from all around the world
come to Toronto to have him perform their heart surgery. The
same day as my surgery, a girl about my age from Israel had a
similar operation. We were told many times that we had the
best, and we only live an hour away from Toronto.
Dr. David agreed with my cardiologist’s assessment and we
discussed the various options. The plan was to have the Ross
procedure done which as many of you know involves a double
valve transplant, replacing the bad aortic valve with your own
pulmonary valve, and using a donor valve to replace the
pulmonary valve. This didn't sound too bad – they said I
would be able to resume a full, active lifestyle after the
surgery including resuming goaltending if I wanted to.
The surgery was booked for August 4, 1999. What happened
next I only found out after waking up. My Mom and Dad were
waiting anxiously when the doctor came out mid-way through the
operation and said "we have a problem". Not exactly what you
want to hear when your son is in the middle of open heart
surgery! Dr. David explained that the cause of my heart
problem was not a bicuspid aortic valve, but rather both the
aortic and pulmonary valves were deteriorated. The doctors
said the valves looked like those in a person with Marfan’s
syndrome, however I don’t have a lot of the other symptoms
like great height (I’m only 5’ 7”), elongated fingers and
facial features, scoliosis, to name a few. Marfan’s is a
condition that attacks the connective tissue in the body and
while not everyone with bad heart valves has Marfan's,
everyone that does has bad valves. I was very lucky because
while there is no definitive test for Marfan's, it can be
fatal and is usually only diagnosed during an autopsy. You
probably have heard of young athletes collapsing on the
playing field - they usually have an undetected congenital
heart problem.
This discovery required scrapping the Ross procedure and
opting for one of two possible alternatives - a tissue valve
or a mechanical valve. There really was not much choice since
being so young and with my immune system still being fairly
strong, the risk of rejection was high and I would need the
tissue valve replaced at least once, probably more during the
rest of my life. We took the doctor's advice "if this was my
son, I would choose the mechanical valve". They also found
that about 2 ½ inches of the aortic ascension was paper thin –
about one tenth the normal thickness – so that was replaced
with Dacron.
The operation as it now stood was a complete success. My
new St. Jude valve is ticking away and my round of tests at 4
months post op, including a Stress test, Echo, Spirometry, and
a Holter monitor, were all passed with flying colours.
Although my hockey playing days are over, I am currently
teaching goaltending to young kids in the hockey school my Dad
runs, I have resumed drumming in our rock band called Shrapnel
(we cut our first CD last summer), and am basically back to
normal. Except of course for the coumadin, no contact sports,
and no more alcohol. My parents thought I would be depressed
about all of this and at first I didn’t know what to think,
but I feel I have gained a new level of maturity and have
developed a real positive outlook on life. After all, I still
have lots of it to live!

(CLICK TO ENLARGE)
Here's my whole family on
Mother's Day 2000.
From left to right: My older brother Craig (21), my Mom
Christine,
my twin brother Scott (18), me in the flashy suit (18), and my
Dad Brian.

(CLICK TO ENLARGE)
This picture was taken on
Father's Day 2000.
There's Dad, Craig, Me and Scott wearing our Sydney 2000
Olympic caps
which we received from our Australian exchange student.
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