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View Full Version : Also 1 yr ago today for me too!!!


Dee
October 22nd, 2004, 01:53 PM
Hi everybody, (sorry this is a little long)

I can't hardly believe it, but it was one year ago today that they found the tumor attached to my mitral valve and transported me 90 miles away to have open heart surgery. The day before was just a normal day for me and that was the last thing I would have ever thought, was that something was wrong with my heart!!!!

This anniversary brings many thoughts and emotions. The last year was very difficult for our family to say the least!! 39 years old and what I thought to be pretty healthy, and out of the blue I'm told that I to have OHS!! What a shock. :eek: The surgery went well, the one bummer was they were hoping to save my valve but were unable to, so I had a St. Judes mechanical put in. Recovery in the hospital went well, was released in 4 days post op. Got word while we were making our 90 mile trek back home that my dad (64 y/o) was on his way to Denver to have some tests run....he hadn't been feeling well for a couple of months and they couldn't figure it out. Little did we know at that time, that was the start of a 4 month hospital stay for him. :(

One and half weeks post op I developed pneumonia and was back in the hospital for 3 days. My husband would come visit me every morning and the morning that he came in my room with a gloom look on his face and closed the door behind him, I knew it had to be about my dad. He had been diagnosed with Lymphoma cancer, Gillian Barre and West Nile. He fought a long hard battle, was told that he wasn't likely to make it a couple of times and then because the Gillian Barre parralyzed him, he was told if he did make it, he would never walk again. It was extrememly hard for me, because I was not able to see my dad until about 6-7 weeks post op. The Dr.'s didn't want me driving over the high mountain passes to get to Denver. Once they released me to go, we would try to go over every couple of weeks or so, the trip was pretty hard on me at the time. We spent Christmas Day with him in the hospital. The end of Feb. he was finally released after tons of rehabilitation and chemo. He came home in a wheel chair and was skin and bones. He wasn't able to move himself from his wheel chair to another chair on his own. He was a very determined man and was going to prove those Dr's wrong........AND HE DID!!!! He is now walking on his own (can hardly tell anything ever happened to him) and the cancer is in remition!! Whooohooooo!!!! :D :D

Having teenagers is in itself a little stressful. Several trips to the ER for my daughter and sinus surgery as well. Another 3 day stay in the hospital for me for an infection and many tests over the last year for various other things. But, there have been many angels looking out for us and we're blessed!! The VR family has been an important part of my recovery but lately I've been so busy that I've been neglecting my VR family. I've been suffering from anxiety and just feeling overwhelmed with life. I need to get back to this family that has been there and understands, because I tell you, no one understands like you guys do!! I tell my friends what I'm going through and they just look at me funny like I must be crazy and then that makes me feel all the more crazy!! The saying that, "you just can't relate unless you've been there" is so so true and I've found that out a lot lately!! So, I hope you'll forgive me for 'flaking' out on you guys for a while, I'm really working at getting my life back as I once knew it and I think the one year anniversary of my OHS is the best time to do it!!! :)

I'm looking forward to celebrating Mon. the 25th, when I was given a second chance on life!!! :D Thank you guys for always being there!!! ;)

Ross
October 22nd, 2004, 01:55 PM
Happy upcoming anniversary! :D

Hope you have a lot of worry free healthy years ahead. :)

Phyllis
October 22nd, 2004, 03:44 PM
Happy Annivesary Dee!
Your story reminds me a lot of Dick's. Three weeks after his AVR last December 18th, he lost his 68 year old sister who had CLL and developed Gillian Barre while on chemo treatment. We're not sure, but she had a flu shot shortly before and we think that might have caused the Gillian Barre as her immune system was so weak. She fought long and hard, but after 10 weeks in the hospital she died of a staph infection. Since Dick was in the early weeks of his recovery, we were unable to travel from CT to OK for the funeral. So glad to hear that your father has had such a great recovery.
Keep counting your blessings and many more to come.

Dee
October 22nd, 2004, 04:45 PM
Thanks for the replies Ross and Phyllis,

Ross, thanks for the e-mail the other day, I might take you up on that sometime!

Phyllis, I'm so sorry to hear about Dick's sister!! It's interesting that you mentioned, Phyllis, that your sister in law might have gotten the gillian barre from a flu shot. My dad's mother also had Gillian Barre some 30 years ago and they think hers came from the flu shot. My dad did not have the flu shot, but they figure his was set off either by the cancer or the West Nile.

I don't run into too many people that even know what Gillian Barre is, so it is interesting that you have had it in your family too. They say it's not hereditary.....I sure hope not, or I'm next in line!!

Thank you for the words of encouragement!!! ;)

Phyllis
October 22nd, 2004, 04:59 PM
We researched it a lot when Dick's sister was diagnosed and I never read anything about it being hereditary, but I noticed in the proclamation that our governor issued this week on flu shots a warning at the bottom not to take the flu shot if you have gotten Gillian Barre from it on another occasion. We were never told by the doctor's that the flu shot was responsible, but we always had our suspicions. It was particularly hard for Dick's Dad who is 100 and healthy to lose a daughter and have a son go through AVR at the same time, but we are almost at that one year anniversary, Dick is 100% and knowing how precious they are, we cherish each day.

Bryan B
October 22nd, 2004, 05:53 PM
Happy anniversary Dee! I too have been suffering from some anxiety and have thrown a pity party or two lately because things haven't gone quite as expected in my recovery. Coming here helps keep me grounded and it helps me to remember that I'm not alone in going though this, and also that there are others here who are going through tougher things in life than me and are persevering. :)

bvdr
October 22nd, 2004, 06:49 PM
Congratulations, Dee. I was sorry not to see you at the reunion but when I found out why I was thrilled you weren't there.

My sister's husband also developed guillian-barre following a flu shot about 30 years ago. At the time he was in his twenties. He recovered and has since avoided the flu vaccines.

tobagotwo
October 22nd, 2004, 07:03 PM
Congratulations on your one-year anniversary.

It sure does make a difference in your life. The valve is not the only thing you carry away with you.

Best wishes,

Karlynn
October 22nd, 2004, 08:50 PM
Happy Anniversary Dee. You look quite mature for a one-year-old. :D

May you have many many years of good health and happiness.