Rhonda
July 7th, 2002, 11:11 PM
Hi all,
I just thought I would post to let you all know Jason, my 11 month old son, DX Severe + Arotic Insufficieny and severe stenosis, had the Ross-Procedure June 17 th at U of M by Dr. Bove. He is doing absolutley wonderful. We spent 13 days at U of M. On day 7 they were doing his discharge routine echocardiogram and chest xray when they discovered he had fluid behind his heart, I was so relieved because I kept telling the nurses that though to them he appeared content I knew something was wrong, my Jason is not a content lil' man he is normaly very out going and always had a smile on his sweet lil face. They had to take him back to surgery and do a pericardio inffussin. The very next day I had my lil' smiley man back, well with a few chest tubes and an I.V pole, but I could tell he was feeling much better. He was sent home on lasix, captopril and Aldactone TID. now it is going on three weeks post surgery and he is doing wonderful, except he still wakes in the morning very stiff and sore but after he loosens up and I give him his Moltin and Atarax he is up running around. He still tires easy but no where as much as he used to. I do have a question, at Jason f/u visit with his reg. Pediatric cardiologist I was told that Jason has mild insufficiency in his aortic valve. What I am afraid of is this going to progess just like before? His insufficiency (mild) was dx at 1 week of age. What if this valve goes bad, this was the one that was suppose to grow with him. I know he will has to have his pulmonary valve replaced(hopefully not for 7-10 years) due to the fact it will not grow with him, and that is the vavle i thought would have a problem.
ok I have rambled long enough, I just want to thank all of you that have replied to my last posting and prayed for Jason. I truley believe in the power of prayer..thank you again:)
hugs,
Rhonda mom to Jackie 12 y/o HH and Jason 11 months old AI,AS and now 3 weeks post Ross-Procedure:)
I just thought I would post to let you all know Jason, my 11 month old son, DX Severe + Arotic Insufficieny and severe stenosis, had the Ross-Procedure June 17 th at U of M by Dr. Bove. He is doing absolutley wonderful. We spent 13 days at U of M. On day 7 they were doing his discharge routine echocardiogram and chest xray when they discovered he had fluid behind his heart, I was so relieved because I kept telling the nurses that though to them he appeared content I knew something was wrong, my Jason is not a content lil' man he is normaly very out going and always had a smile on his sweet lil face. They had to take him back to surgery and do a pericardio inffussin. The very next day I had my lil' smiley man back, well with a few chest tubes and an I.V pole, but I could tell he was feeling much better. He was sent home on lasix, captopril and Aldactone TID. now it is going on three weeks post surgery and he is doing wonderful, except he still wakes in the morning very stiff and sore but after he loosens up and I give him his Moltin and Atarax he is up running around. He still tires easy but no where as much as he used to. I do have a question, at Jason f/u visit with his reg. Pediatric cardiologist I was told that Jason has mild insufficiency in his aortic valve. What I am afraid of is this going to progess just like before? His insufficiency (mild) was dx at 1 week of age. What if this valve goes bad, this was the one that was suppose to grow with him. I know he will has to have his pulmonary valve replaced(hopefully not for 7-10 years) due to the fact it will not grow with him, and that is the vavle i thought would have a problem.
ok I have rambled long enough, I just want to thank all of you that have replied to my last posting and prayed for Jason. I truley believe in the power of prayer..thank you again:)
hugs,
Rhonda mom to Jackie 12 y/o HH and Jason 11 months old AI,AS and now 3 weeks post Ross-Procedure:)