Rhonda
May 7th, 2002, 10:43 AM
Hi all,
My name is Rhonda I am a 33 year old mother to a 9 month old beautiful baby boy named Jason William. Jason has moderate AS and severe aortic insufficiency, and an enlarged and thickened left ventrilce, he is on Captopril 2mg 3 x aday. Jason was dx at 2 weeks of age with mild forms of each condition but has quickly progressed to more severe. He currently sees his Pediatric cardiologist on a monthly basis for the past 3 month. We recently went and had a second opinion done at U of M. Only because the family did not believe that he had such a serious condition, because to look at Jason all you see is a healthy 20# 4 oz active baby boy, though he sleeps much more that a "Normal " child he naps aprox. every 1 1/2 to 2 hrs because he tires so easy. Anyway what I am in search of is indications for the Ross-procedure. Both dr. told me he will have to have this surgery done. Jason regular pediatric cardiologist told me he could have th surgery from 1 moth to 2 years, our second opinion doc told us basicly the same thing except he mentioned that some doc would choose to do it now..SO Ok what is that indicates that it is time tho have the surgery. I am fightened by the current damage being done to his heart and also the possiblilty of sudden death, yet I am afraid of the surgery too. A mother form another support group had mentioned this site to me, she also mentioned things like pressure gradient and other terms to that sorts, which i honestly have no idea what they mean. Soo if any one knows what question I should be asking at our next PC appt. (may16th) I would be more than appriecative.
Thank you soo much for your input and time
My name is Rhonda I am a 33 year old mother to a 9 month old beautiful baby boy named Jason William. Jason has moderate AS and severe aortic insufficiency, and an enlarged and thickened left ventrilce, he is on Captopril 2mg 3 x aday. Jason was dx at 2 weeks of age with mild forms of each condition but has quickly progressed to more severe. He currently sees his Pediatric cardiologist on a monthly basis for the past 3 month. We recently went and had a second opinion done at U of M. Only because the family did not believe that he had such a serious condition, because to look at Jason all you see is a healthy 20# 4 oz active baby boy, though he sleeps much more that a "Normal " child he naps aprox. every 1 1/2 to 2 hrs because he tires so easy. Anyway what I am in search of is indications for the Ross-procedure. Both dr. told me he will have to have this surgery done. Jason regular pediatric cardiologist told me he could have th surgery from 1 moth to 2 years, our second opinion doc told us basicly the same thing except he mentioned that some doc would choose to do it now..SO Ok what is that indicates that it is time tho have the surgery. I am fightened by the current damage being done to his heart and also the possiblilty of sudden death, yet I am afraid of the surgery too. A mother form another support group had mentioned this site to me, she also mentioned things like pressure gradient and other terms to that sorts, which i honestly have no idea what they mean. Soo if any one knows what question I should be asking at our next PC appt. (may16th) I would be more than appriecative.
Thank you soo much for your input and time