Surgery: Was anyone else this scared?

[ArleneT]

Hi all, first post and I'm so glad I found this forum. Looks like a lot of good information here.

I have surgery scheduled for 2/6 for what will hopefully be a mitral valve repair and am absolutely terrified. Even though I knew it was coming, since I found out the date on Friday, I've been a bundle of nerves. I've been making lists of things to do before I go, things to take, things to have ready for post-op. Now to find the time and energy to get some of this stuff done! :-)

Will be traveling from Florida to Cleveland for this. Couldn't have picked a worse time for a warm weather lover to have to go north!

Any tips on how to get through the next few weeks would be appreciated. Has anyone put together a check list I can view to see what I've left off mine?

Arlene

[JCDavis81]

Hi Arlene,

Welcome to the board! To answer your question -- are you KIDDING?! Of course we were scared, or at least I know I was! As we say around here, the anxiety of the surgery before hand is almost always the worst part. Surgery like this is a hard thing to get your head around and it takes a while to come to grips with it. I went from being scared to angry to scared again to sad to depressed to resigned to scared and on and on and on.

But all of those emotions are normal and part of the process of dealing with the surgery. Different things work for different people but the best thing that helped me was this board. Use this forum to post your questions and thoughts, to vent and to talk about how you're feeling. Believe me, it helps.

Hang in there,
Joe

[Karlynn]

Welcome Arlene!

I'm so glad you found us. There's much to read here and lots of information to take in. Take a deep breath and know that you've found a group of around 1500 people who know your fears, know they're normal, and know that you'll do just fine.

[greggo32]

Hi Arlene,

I have been a member of VR.com for almost 4 years. I live in Boca Raton, FL. I have been to 3 of the 5 VR.com reunions and have enjoyed sharing life experiences with so many wonderful people on this site. I'd be happy to talk on the phone with you-greggo32@bellsouth.net

Truly,

Greg

FYI-Cosgrove did my first valve surgery

[Phyllis]

Hi Arlene,
Scared is normal, but hopefully you will find peace as you get closer to the date. Here is a checklist of what to take to the hospital:http://valvereplacement.com/forums/showthread.php?t=13283&highlight=hospital+checklist
I believe there is one for when you come home too and will post that when I find it. In the meantime, I will put you on the calendar for 2/6 and we wish you the best for a successful surgery and uneventful recovery. You're going to one of the best places for surgery (cold or not) and I am sure you will do fine.

[ArleneT]

Joe, not sure I like having to join this board, but very glad to know it's here. I am so nervous that at times I am sick to my stomach. Hope that gets a little better.

Will definitely be reading the posts to gain some perspective from those of you who have been through this already.

Arlene

[ArleneT]

Thanks for the welcome.

This time last year, I was reading posts on a Breast Cancer forum. I had had surgery and chemo and was just starting radiation. I found so much support and information there and was hoping there was a group like this for my next adventure. I know that the best insight about what to expect can be found right here.

Arlene

[Phyllis]

Arlene,
Here's the thread for how to prepare for homecoming: http://valvereplacement.com/forums/showthread.php?t=13578
Maybe we should get Ross to post these two threads under the "must Have" reference thread or someplace else where they are readily available for newbies.

[ArleneT]

Hi Greg,

Cosgrove is also going to be my surgeon. It's so good to meet someone who has been to him. What is his personality like? Some doctors are very skilled, but can't relate well to patients. Can you give me any insight on what to expect?

Was there a specific reason that you didn't use him for your second surgery?

Thank you,
Arlene

[ArleneT]

Phyllis, thank you so much for that link. I did a search, but didn't find this one. Will read it right now.

Arlene

Arlene,
Here's the thread for how to prepare for homecoming:

[Georgia]

Geesh, Arlene! You've had a couple of rough years. I am also a bc survivor - but I had 13 years between the bc and the valve surgery.

Tell you this - I'd have any number of valve surgeries rather than undergo the bc stuff - the chemo and radiation go on and on - and then it's years before you're considered cured. Nasty stuff.

This is mechanical - you go in and have a huge surgery and your heart is fixed. It takes a few months to recover, but the surgical pain is pretty much gone in 2 - 3 weeks for most folks. The recovery problems consist more of restricted activity, incredible exhaustion, lack of concentration. If you had standard chemo and radiation you've experienced the exhaustion. But your treatment for valve problems won't make you sick, it'll make you better.

You know, there's nothing wrong with getting a little chemical assistance to take the edge off your anxiety prior to surgery; the docs don't want your heart further stressed. Suggest you give them a call.

I'm sorry you've got to go through another traumatic medical emergency so closely on the heels of the last one. But having survived the last one, you'll do fine on this.

btw - if your veins are shot from chemo, I suggest you request a pic line for bloodwork in the hospital.

Hang in there and keep visiting.

[ArleneT]

Georgia, that's the kind of statistic I love to see! Gives me lots of hope.

The first chemo was the worst. I tossed up every thirty minutes for two days and ended up in the ER for dehydration. After that, they added a med to what I was taking and it made all the difference. The rest weren't fun, but were doable.

My left arm can't be used for blood draws, IVs, etc, so the veins in my right arm are pretty well trashed. Pic line sounds like a good idea.

When I was finished with radiation, I tried to get back on an exercise regimen and that's when I realized something else was wrong. Just could not believe how winded I was from a short little walk. When it didn't get better after a few days of trying to get back in shape, I headed for the doc and then went through months of appointments and tests that ended with the surgery reccommendation.

Thanks for your encouragement.

Arlene

[geebee]

Welcome Arlene,

You wouldn't be human if you weren't scared and I am sure we were all petrified initially. Even after 3 OHS, I never got over being scared because we hope for the best but plan for the worst.

Try to focus on the fact that you will soon be all fixed up and feeling better. Also, you will get lots of support here even if you just need a shoulder to cry on.

We will help you through.

[Kate]

Welcome Arlene!
I had my valve job done at the Cleveland Clinic about 4 months ago (different surgeon though.) Just thought you might find it comforting to hear that I was absolutely amazed at the level of care and compassion I received while there. I never waited more than 5 minutes when I rang my bell (if that) and every single nurse (with one possible exception :) ) was overwhelmingly helpful and kind. Even the people who push the wheelchairs around were nice! I realize the most important thing is the surgery (and that went well too) but frankly, since I was asleep, it was the quality of care afterwards that made such a difference to me. Anyway, to make a long story short, you can expect great care at Cleveland. Best of luck, Kate

[ArleneT]

Gina,

I can't tell you how glad I am to have found this board. I read a lot of posts on the Breast Cancer board, but rarely posted. I can tell already though that I am going to need to be here. My anxiety level over this is far worse so far.

I think it is going to help a lot to get back to work tomorrow. I have a lot of work to get finished prior to surgery and being that busy will be a good thing.

Arlene

[Rick W]

Hi Arlene
My AVR surgery is on Monday 1/23. At this point I am having to accept what I am feeling is normal. Slight panic, especially when I wake up, depression, some confusion probably from thinking too much. After reading what others have posted over the years I have come to see what they were talking about with regards to pre-surery gitters. Your feelings are what count right now and I am pretty sure they are not unusual for what you are facing. Preparation will ease some anxiety and so will sticking to what you enjoy doing on a daily basis. Try not to get overwelmed to where you deny yourself some fun.
I know how you feel Arlene so I hope what I've said helps in some way.

Rick

[ArleneT]

Kate,

Thanks for the welcome, Kate! Your comments about Cleveland Clinic are very reassuring. I have a few questions about CC that maybe you can answer since you were there recently.

Some hospitals have PCs with internet access that patient families can use to pass on surgery news to other family members. Do you know if that's available at CC?

Did you by chance stay in the Guest House during pre-op appointments? If so, is that hotel close enough or do you reccommend a different one?

Arlene

[lonzy]

Arlene, I am praying for you. I(and everyone) on this board, I believe can understand your fear. I am not quite as far along the process as you as this has all begun for me on the dec. 30th, when I got the results of a routine physical from my physician. Since I heard his words "severe aortic stenosis" and "aortic valve replacement" Each and every waking moment, I have felt this hanging over me, and realizing more and more, what I may have to face. those on this board, who have been thru it, and those of us who are in the process, can provide us the hope, experience and reality of what we are facing. Thank god, that there is the ability and skill of medical professionals who can make us well again, even if we don't know we need it today. So I don't ramble anymore, Yes I am scared, on a 1 least to 10 most on the SCARED SCALE.....I AM A 20---RITE BESIDE YOU, but we will both make it thru to live this wonderful life we live cardiologist for me tomorrow, 1/17/06--some answers finally...God bless you and I look forward to your posts---after surgery---when you say "whew, that wasn't so bad, and I feel great" lonz

[ArleneT]

Rick, I am overwhelmed that you are dealing with this also and took the time to offer suggestions and comforting thoughts. Thank you so much and yes, your comments have been helpful.

I will certainly be thinking about you a week from today. Hope you have as easy a time as possible!

Arlene

[ShezaGirlie]

Hi there Arlene and welcome to the greatest support site this side of the BC one..! For what it's worth, my sister is a BC survivor...2006 - 1989 = a bunch of years..:D and I'm the AVR survivor...2006 - 1999.

And you don't have the "scared basket" all to yourself...we have all been there and know exactly how you're feeling right now.

Yep, leaving this nice warm weather to go to Ohio in February...:eek: You're going to the best place with the best surgeon so brave the snow! And your neighbor there in Florida, Greg - is a sweetheart! We're all with you as you continue on the road to wellness..!

Oh, almost forgot my one hint for your hospital stay...UNPLUG THE PHONE! Well, can I have two hints...? Second hint...send all the flowers to the Nurses' Station and to the Nurse Manager and you'll get real good service, plus the fact you'll be less likely to sneeeeeeeeeeze!

[Praline]

I want to tell you that if being scared is normal I am way up there on the "normal scale". I am sitting here waiting for Wednesday to have MVR, bypass, and maze procedure. I go from telling myself to relax, that the heart is just another muscle, to getting chills thinking about the surgery.
I only found out November 4th that there was something wrong with my heart. That was after spending the month of September away from home because of Katrina. Came back, house is okay but school where I was working was under water for several days. Nothing could be saved. I am now working at a new school. Go for yearly check-up and BAMMO!!
Thank God for this site or I would have gone crazy .This is the only outlet for my fears, worries, frustrations,..
I have posted here so much that sometimes I almost expect the computer to reject my post with one of those " you have performed an illegal operation" message.:D
As soon as I am really awake after my surgery, I will think about you and send some positive thoughts your way.
Take care.

[rbl1999]

Hi, I just want to reiterate that what you feel is normal. Mine was kind of quick, but the day of the surgery I felt a real peacefullness come over me, I was tired of worrying about it and just wanted it over with.. Where do you live in Florida? I live in North Port, which is about 35 miles south of Sarasota. Rose

[ArleneT]

I can only imagine how nervous I wil be when my surgery gets as close as yours is. Wish I could do aomething to help you!

Being on so many prayer lists over the last year really helped me deal with the chemo and radiation. I will be thinkning of you on Wednesday and sending up a few prayers that you have a speedy recovery.

So glad your home is ok and you will be at home to recover.

Arlene

[ArleneT]

Sheza, this certainly is a great place. Very welcoming and supportive. I will be glad when I am far enough along to be recovered and offering advice to other newcomers. Seems like that day is so far away right now.

Good idea about the phone. Ditto on the flowers. Maybe I will keep just one. I love the smell of fresh flowers.

Arlene

[ArleneT]

Rose, thanks for offering such encouragement. Hope I manage to find some peace with this. Right now, it's a tad elusive.

Small world. I grew up in Sarasota and still have family there. I live in Naples now.

Arlene

[barbwil]

Welcome, Arlene!
I had a mitral valve repair and maze procedure last August at the Clinic.
You can't tell what the weather will be like when you come because we have had some of the warmest weather for winter; one day last week it hit 61 degrees (in January!!!) But the next day can drop into the 30s.
I don't know if there is a PC in the waiting area but there is one in a small sitting area at the end of the hall where they will take you after a few hours in the ICU.
The Guest House is across from the Clinic on an extremely busy street but there are small , free, buses that transport from the hotel to the hospital very frequently all day. Rooms are pleasant with ironing board and iron and all the usual things you find in a nice hotel. A resturant next to the hotel and a wide variety of foods in the clinic itself, salads, sandwiches, full dinners, fast foods, etc.
Suggest you don't go sight-seeing unless you know exactly where you are going, not a very nice area surrounding the Clinic but you will be perfectly safe in the immediate area.
I turned 75 two months after surgery and folks could not believe how well I came through it all. One of my daughters lives in Orlando and was able to be up here during my 6 days in the hospital and for a week after I got home.
Will keep you in prayer until we see a post saying how well you are doing!!
God bless, Barb

[ArleneT]

It's so good to get such specfic info on CC. These may seem like trivial things to want to know, but I find my anxiety level dropping a little with all the wonderful information I've gotten here today.

You sound like a real inspiration! And I am so glad you are doing so well.

I need to find a good restaurant or something in the area. Learned today that Friday will probably be open also with no appointments, so I will have a three day weekend and the day before surgery also happens to be our anniversary. I am so fortunate to have such a supportive husband. He took me to every appointment during chemo and has been my rock. We need to find something fun to do, but it will need to be close since we don't plan to rent a car. That reminds me. I need to check out options for getting from the airport. What else have I forgotten!? :-)

Thank you again for taking the time to help me.
Arlene

[MitralMan]

I have one word for you: iPod!!

Looked like heck when I came out, resting pulse was 100. My Apple iPod kept me going in those first few days after surgery. If I were you, I'd start zoning out with those buds in my ears now!

;)

A year later I've just come back from skiing and my resting pulse is 53.

A mitral valve repair is a miraculous procedure -- I'm just glad we're doing it now and not 50 years ago!!!

You'll be fine!

[maka]

Arlene, I was not scared...TERRIFIED :eek: :eek: was most likely...
But as the operation date came closely, peace came to me and everything looked OK. I know what you must be going through...... myself....Breast cancer 25 years ago and mitral valve repair last August
Keep up your faith...everything willl be OK:D

[maka]

Arlene
Forgot to mention. My left arm can't be used for draw blood, etc. either so I made sure to let EVERYONE know about it. The nurse placed a big tape over my left arm with a note DO NO USE before I was taken to the operating room and a large sign was posted behind my hospital bed. Maybe you may want to suggest they do something similar

[ALCapshaw2]

As a Hodgkin's Disease and Radiation Treatment Survivor, (prior to Bypass and then AVR Surgery), I can't help but wonder if you had Radiation to the CHEST?

We have at least 10 members who have had Valve Replacement Surgery 2 to 4 decades after their Radiation Treatment to the Chest. I can give you the screen names if you like (or do a search for Hodgkins).

Bottom Line: Due to scar tissue buildup from radiation, most surgeons recommend getting a Mechanical Valve which should last 'forever' and hopefully NOT require a second OHS (Open Heart Surgery). It would also be wise to have BOTH the Mitral and Aortic Valves examined closely for signs of damage and replace BOTH if damage is 'significant'. You may want to read Johnny Stephens
'Personal Story' for more detail.

You may also want to read some of Caroline Perkins posts(a.k.a. "Perkicar" screen name). She is another Radiation survivor and went to the Cleveland Clinic for her surgery.

'AL Capshaw'

[KristiinSD]

Scared, terrified, overwhelmed, etc. I won't say that waiting is the worst (since the recovery has not been a walk in the park) but the whole thing sucks...I am just happy to live in these times when so many advances in cardiac surgery. Some people report a sense of calm before surgery, I was just very happy to have good medication and responsive care-givers so I remember next to nothing about pre-surgery...I don't think there is any harm in asking for anti-anxiety meds for this waiting period.

Kristi
mitral repair 11/30/05

[perkicar]

Kate,

Thanks for the welcome, Kate! Your comments about Cleveland Clinic are very reassuring. I have a few questions about CC that maybe you can answer since you were there recently.

Some hospitals have PCs with internet access that patient families can use to pass on surgery news to other family members. Do you know if that's available at CC?

Did you by chance stay in the Guest House during pre-op appointments? If so, is that hotel close enough or do you reccommend a different one?

Arlene

Hi Arlene--
Like Kate, I had my surgery at CCF, but with a different surgeon (Dr Bruce Lytle). They have computers on each floor in the lounge that families can use to send messages and check e-mail. Some of them are older models but they get the job done. Like Kate, I found that the nursing care there was wonderful--and being a nurse I'm probably more picky! I was on G10 after I got out of ICU, and it was wonderful. If you can get a private room take it, it's worth the extra money and will be much more relaxing for you. You may get one anyway if Cosgrove is doing your surgery!
I stayed at the Guest House for my preop visits and family stayed there when I had my surgery. Of the three options it's the most economical and of course, is very convenient. The deli that is attached has wonderful soups and sandwiches! There is also a lebanese restaurant that my brother and sister-in-law went to that they loved! (and my SIL is not very adventurous food wise!)
They also offer a service caller thestatus.com which is a web page all about you that a family member can keep updated with your progress during and after surgery, so folks can check on you and leave messages of encouragement and caring. You should get a flyer about it in your surgery packet. I don't know if my page is still up or not, but you can check it out if it is. Web address is www.thestatus.com; patient name is Perkins and the password is perky2005.
I am also a breast cancer survivor, 16 years since diagnosis. I still belong to the breast cancer list. One of my good friends' mother lives in a nursing home in Naples--she is also a BC survivor and visits Naples frequently to see her Mom. I'm sure she'd love to meet you some time when she's there.
I got some Xanax from my local cardiologist (I travelled to Cleveland from Louisville kY for my surgery) to help with the anxiety--it really helped "take the edge off" and I never felt drugged up!
Please keep us posted and feel free to private message me . Remember, there is no such thing as a silly question! You'll do fine, the waiting is the hardest part!

[perkicar]

Hi Arlene-forgot to mention that you will have a central line (aka SwanGanz) in your neck that they can use for blood draws. Mine was taken out before I left ICU the day after surgery. I was (and still am LOL) a difficult stick so got the anesthesiologist to put in a central line while I was in surgery. Didn't get to keep it the whole time since I ran a fever and they were worried about infecting my valve, but the blood draws were the easy part-the phlebotimists there are THE BEST I've ever had. I NEVER had to be stuck more than once when they came to draw blood. Getting an IV started was another story. (I think it took 8 tries) They did end up using my left arm (mastectomy side) but it's been alot longer since my surgery and LOL, they were desperate. (as was I!) I only needed the IV for a heparin drip after surgery, once I was in my room I was drinking plenty and didn't need it for hydration.

[Dustin]

... since I found out the date on Friday, I've been a bundle of nerves.
Arlene


Arlene,

Last time I checked, I was 6 foot tall, healthy, and not know to "whine" easily. But a standard cardiac catherisation was more than enough to let me shake like a little baby. So don't talk about OHS, you could probably hear me on the other side of the Atlantic.

[hensylee]

welcome from another Floridian. I am in Panhandle, lived in Mid-Florida for 20 yrs, grew up in Miami.

Yes - scared. That's the main reason folks stop in to VR and then we are able to support right up to and after surgery. That's the reason Hank started this site and it has reached thousands...... You'll be scared right on up til the day before surgery; then you finally decide it's inevitable and you give in. But by the time Feb is here, after being in this site, you will be less scared, I am sure. You will see all these "survivors" of this and how healthy, happy everyone is. And you get to ask all the questions you want answers for and if none of us seem to have the answer, one of us will find one/several for you. Blessins......

[Christian]

Hi Greg,

Cosgrove is also going to be my surgeon. It's so good to meet someone who has been to him. What is his personality like? Some doctors are very skilled, but can't relate well to patients. Can you give me any insight on what to expect?

Was there a specific reason that you didn't use him for your second surgery?

Thank you,
Arlene

My wife had a Cosgrove valve repair on November 1. She's doing very well -- she was "back to normal" well before Christmas. Her scar is less than 3 inches long. If you'd like to talk to her, send me a PM and I'll give you her number.

The PC nearest to her recovery room had so many filters on it that we couldn't use it to connect tot he Internet. But there's Internet available via your room's TV.

Request a private room as soon as you can. It's supposedly $80 extra per night but we were never charged.

[MarkRose]

Welcome !!!
I found this board a few months before my OHS on Jan 6th, and I found it helped me enormously!
We are all nervous/scared/resentful before the big day. It's natural. Praying and/or reflecting helps a lot, and you can't beat a positive attitude!!!!
I can tell you that today, I don't even feel like I HAD major surgery!
I brought a big knapsack with me to the hospital, but didn't use much.

Best thing to bring - robe and comfy slippers instead of those standard issue flimsy ones they give you in the hospital! Books, if you like to read, photographs ... important phone numbers if you are going to get a phone in your room. DON'T bring anything valuable or money.
Concentrate on resting, and try to do everything the doctors and the nurses tell you to do!
Good luck! I'll keep you in my prayers.

[Atlanta Sweetheart]

Arlene, you are not the only one afraid, I too was a basket case. I think it's the not knowing for sure if you will get a repair or replacement when you go in for the surgery. I calmed down alot once I had my pre-op and then turned everything over to God. Good luck and I'll be looking for your post once you're "on the otherside".

[ArleneT]

Need to start another list. What to do once I am there. I know I am going to get there and forget all these good ideas I've receievd in the last 24 hours.

By the way, I am just overwhelmed at the amount of support and help I've found here. Thank you ALL so much!

Arlene


Forgot to mention. My left arm can't be used for draw blood, etc. either so I made sure to let EVERYONE know about it.

[ArleneT]

I am hoping that a repair is possible. Guess I need to look at the alternatives, though if that isn't possible.

I think they will be taking a very close look at the aorta also because I have Marfans. I've never had any problems due to it before, but it's possible this is connected to that.

Thank you so much for your suggestions. All good ones!

Arlene

As a Hodgkin's Disease and Radiation Treatment Survivor, (prior to Bypass and then AVR Surgery), I can't help but wonder if you had Radiation to the CHEST?

[ArleneT]

Carolyn,

I am SO glad I found this site! It is so wonderful to hear from people who have been to CC. It's really making a difference in the way I feel about this.

I checked out your web page and that is awesome! That will make keeping friends and family updated so much easier.

The last few IVs I've had to have have been awful, so getting a central line is a great idea.

Thank you!!

Arlene

Hi Arlene--

[ArleneT]

I have you beat on both counts. I am 6'2" and could probably qualify easily as a whiner. I Hate needles! :-)

Arlene

Arlene,

Last time I checked, I was 6 foot tall, healthy, and not know to "whine" easily.

[ArleneT]

I've only been here about 24 hours and have already found this board a tremendous help.

The first thing I bought was a nice warm robe. Slippers came next. I plan to take some books and hope I will feel like reading.

I know that prayers got me through the last year and I will be very grateful to you for including me on your list.

Arlene

Welcome !!!

[ArleneT]

I spent many summers in Panama City with my aunt when I was growing up and love that area.

This site has made such a difference for me already. Some people don't want much information before something like this. If it was my husband, he wouldn't want to ask questions at all. Just tell him when and where to show up. I am the exact opposite and am feeling a little less stessed already after reading all these replies.

Thank you,
Arlene


welcome from another Floridian. I am in Panhandle, lived in Mid-Florida for 20 yrs, grew up in Miami.

.

[ArleneT]

I would love to talk to your wife. I'm sure it would be helpful. Thank you so much for that offer.

You can use the internet from the TV? Can my husband enter information from there on the posting web site?

Will definitely request a private room.

Thank you!
Arlene


My wife had a Cosgrove valve repair on November 1. She's doing very well -- she was "back to normal" well before Christmas. Her scar is less than 3 inches long. If you'd like to talk to her, send me a PM and I'll give you her number.

[ArleneT]

Cindy, I live in Naples now, but spent a good part of my life in Marietta. There are so many things I miss about it. It's a wonderful place to live.

Thank you so much for your encouragement.

Arlene


Arlene, you are not the only one afraid, I too was a basket case. I think it's the not knowing for sure if you will get a repair or replacement when you go in for the surgery. I calmed down alot once I had my pre-op and then turned everything over to God. Good luck and I'll be looking for your post once you're "on the otherside".

[Sharlo]

Hi Arlene, I know how you are feeling.. I will be going in for Aorta Valve replacement on Feb 1st. I will have the caterization on the 30th of Jan to see if I have any blockage and will have a bypass at the same time if needed. I also have bundle branch block and might need a pacemaker after this operation. I just found out about this website and it's been a great help to me in just the two days that I have been in here searching and reading. It is helpful to talk with those that have been thru this already. When I first found out I definitely need the operation I was petrified, but I've been praying that God will take away the fears and it has helped. I am trying to keep a positive attitude and look forward to having this behind me and start to feel better than I have in years and get back to having energy and having fun again in my life.... I will keep you in my prayers as well.

[ArleneT]

Hi Sharlo,

I leave on 2/1 to go to Cleveland for pre-op appointments, so I won't be near a pc to check on your results for a while, but I will certainly be praying for you also. I know that prayer is what got me thrugh the last year. I certainly couldn't have done it on my own.

Your positive attitude will also help a lot. Keep that up in the weeks ahead.

Thank you and I know you will do well.

Arlene

[joanne6]

So glad you found this site. I didn't find it until several weeks after my surgery. Have you checked the link for what to take to the hospital? The most important thing to have at home is a recliner. It was my best friend for several weeks after my surgery. I slept in it at night for several nights and relaxed during the day. Getting up is another story.
I also was very scare prior to the surgery. I worked until the Fri. before and only had the weekend to really be scared. My kids came over and kept me busy the day before and 5:30am came very quickly.
Once you get to the hospital you will not be nervous at all. I didn't go to Cleveland because I didn't want to be away from my family.
Keep reading and posting. You will have lots of friends here to hold your hand before your surgery.
Sending hugs to you.

[Lotti]

Gosh, Me too!
I have my surgery on 6th feb and yes I'm terrified too. I talk a lot to any one who'll talk to me, which does help. The hospital I'm going to is also brilliant and they have seen me through a couple of tough spots on the phone, when I've manifested all kinds of aches and pains. Are you on MSN messenger. If so you can chat if you want, or of course on the lovely chat room here at VR. Give a reply and I'll pm you my msn address if you like. Apart from that I tru to keep busy and clean1

Wishing you a smooth journey.

Take Care

Lotti

[paulk]

Hi,

It didn't really hit me until I scheduled the surgery for 2/9. Now I'm kind of freaking out, at least inside. Hope it helps just knowing others are going through the same thing.

My family and I are taking a vacation in Florida with my family next week, hopefully that will help keep my mind off things. Then 3 days of work, then the hospital. Whew.

-Paul

[hpuehler]

Arlene,
I just had my aortic valve replacement on 1/4/06. I was very nervous before the surgery. I prayed alot and the day of surgery, my surgery got cancelled at the time of the surgery. I spent the night at the hospital and that night and the following morning I had an overwhelming calm. My prayers a with you. Like someone mentioned earlier call the Dr. and get something for your nerves. You want your body in tip top shape for the surgery, not all stressed out.
My thoughts and prayers are with you!

Heather:D

[ArleneT]

I am really busy at work right now trying to get a big project finished up before taking off and that's been a blessing. It really does help me take my mind off it. I've been busy on the weekends also getting ready, but I still have some down time, usually at night and that's when I start to get really nervous. Just bought a cd/mp3 player today and will spend some time getting some music ready. That should help too. Busy is a good thing.

Thanks so much for taking the time to post. The support on this forum is phenomenal.

Arlene

[ArleneT]

Sorry, I don't do messenger or any of the other talk programs. I spend so much time on the pc at work that I try to limit my time on here when I get home.

Will have you in my prayers and I hope you do great.
Arlene

[ArleneT]

Paul,

Hope you have a wonderful vacation in Florida. I looked at your web page and saw that you like the outdoors and the Everglades. If you are going to be near the Naples/Ft. Myers area, let me know and I will send you a few "don't miss" places in case you don't know about them.

Best wishes on a very successful surgery.
Arlene

[ArleneT]

Prayers are certainly welcomed. I know how much they have already helped me. I'm so glad you were able to find that calmness before your surgery. Hope I make it there! :-)

Arlene

[sfconstrct]

arlene, i haven't even scheduled my avr yet, met the surgeon just last friday. don't really happened he did spring a suprise on me that he thought my arota was bulging and ordered one more test a cat scan to take accurate measurements. Otherwise my cardiologist said the rest of my heart was in great condition and had even told me to expect good news from the surgeon as he knew that i wanted an less evasive procedure only to be told about the A.O. floored my wife as well. Sorry to ramble i have been a bundle of nerves since trying to block all the stuff out but am having difficulty. even got some sleeping pills today so i wouldn't constantly toss and turn hard to turn off the brain. I guess it is very normal but since I will probablly schedule it after the cat scan for prob. months end i am already freaking. All will be well. think of life after how good it will be. I know easy to say. Steve

[MarkRose]

Hi Arlene!
I had surgery on Jan 6th - and I love this board too! It helped so much to hear the success stories and positive attitudes from the other members.
I came to NY from Brazil to have the surgery, talk about a change in weather!
I WAS very nervous, but also very confident in the surgeon's skills, and in my own ability to heal. Praying was also a comfort.
Don't stress too much about getting things done before you go in.
Do be sure to bring a robe and slippers, it will give you a boost to parade in the hallways when they get you walking. I brought some family photos, especially of my 3-year-old son, and some other personal items that are special to me.
Good luck, my thoughts are with you!

[Michaelka]

I am one of the very scared. This is not like any surgery I have ever had.

Getting through the next 6 days will be more and more challenging.
I do not know what I will do after I am discharged from the hospital. I do not have any place to stay but my appartment. I am fairly new to the area and do not know anyone that can help out. What do I do when I get home?

(My wife left me August 31, so she is gone) I am still living out of boxes as I moved withing the last 2 months.

Does anyone have any suggestions? I do have a great reclining chair / couch so that will help. I am tempted to call for some xanix or something also. This thing is really messing with me.

I am scheduled for a mitral valve repair and quite possibly a Cox-Maze proceedure plus hopefully I can have 5 broken dislocate ribs repaired. The ribs were a souvineer from an auto wrieck Feb 6 (1 year to the day) before my surgery. In my auto accident I had 13 broken ribs, flail chest, lung contusion, 3 units of plasma, chest tube, intubated for 5 days. It was not fun and I am hoping the residual effects of the 5 broken ribs could be repaired at the same time.
Real-scared

[sue943]

Reading through these posts is making me feel something of a freak! I wasn't in the slightest bit scared, I had the attitude of 'if it happens, then I won't know anything about it'. My daughter really suffered though, she really didn't need the worry a couple of weeks before her wedding - but at least she didn't have last minute wedding nerves, she didn't have time with my double valve replacement on 30th June then having complete heart block on 14th July with her wedding on 15th July!

My doctor said that I am just plain weird, when I had my stroke and he called for an ambulance I fussed about having to get back to work as soon as possible, they needed me, then when I knew that I had to have the valves replaced I was more worried about missing my daughter's wedding! I was apparently supposed to worry about having a stroke and surgery, not about work and weddings. :)

I am sure you will be just fine, it is marvellous what they can do these days - just think of what it would have been like fifty years ago.

[ALCapshaw2]

I do not know what I will do after I am discharged from the hospital. I do not have any place to stay but my appartment. I am fairly new to the area and do not know anyone that can help out. What do I do when I get home?

(My wife left me August 31, so she is gone) I am still living out of boxes as I moved withing the last 2 months.

Does anyone have any suggestions? I do have a great reclining chair / couch so that will help. I am tempted to call for some xanix or something also. This thing is really messing with me.


Michael -

Contact your surgeon's office ASAP and tell them about your situation. They should be able to offer some alternatives. There may be a surgical rehab hospital where you could go for the first few weeks until you are better able to take care of yourself. After you are discharged to home, some sort of visiting care may be arranged. Again, your surgeon's office should know who to contact for these services. Good Luck!

'AL Capshaw'

[hensylee]

Michael, I was going to suggest the same thing Al did. You need somebody, if you can get somebody, at least for the first week or so. You can't drive, you can't lift, and you will be very sore. There has to be an answer for you somewhere, and the place to start is your doctor's office. A local church or something in the community? While you still can get out and do stuff, you need to stock up on foods that you can easily prepare and get enough to last you awhile so that grocery shopping won't be a problem. Perhaps your dr can send home health people to check on you. Don't wait til the last minute.

[Georgia]

Michael, you might also call the social worker at the hospital where you'll have surgery; I honestly don't think they'll let you go home without someone there. I'm sure they'll have suggestions and are used to making arrangements for people in your situation.

In these last few days you probably ought to try to get a bit organized at home. If you have stuff in boxes you'll need, you must get it out and make it easily accessible - you can't be digging through them after surgery.

A couple other things you really need - a good scale (you need to weigh yourself every morning to watch for fluid accumulation); and a small stool to sit on in the shower, as the hot water can make you light-headed.

[Michaelka]

Well, I am fortunate to have a good "bath" chair for adults. Thanks to previous knee surgeries I have had to have one before. Once you get one, you you tend to keep it.

[Mary]

Well, I am fortunate to have a good "bath" chair for adults. Thanks to previous knee surgeries I have had to have one before. Once you get one, you you tend to keep it.

Michael,
You'll also be under a weight lifting restriction. I was given a 5 lb. limit, and unfortunately, a full gallon of milk weighs more than 5 pounds. I learned that the hard way on my first day home.
Refrigerator doors can also be difficult to open the first few days and trying to stretch to reach a top shelf isn't recommended.
You need to have a plan for how and what you will eat the first 4-5 days. In addition, you won't be able to drive, so you will have to make arrangements to get to the doctor's office for your first post op visit.
As Al, Ann, and Georgia wrote, please consider how you will manage these obstacles if you are lacking help at home.
Best wishes-
Mary

[Michaelka]

I was fortunate that I also picked up at a "Medical Supply Store" one of those 2' grabber hands. They are great for picking things up off of a shelf or using to leverage open a refrigerator door.

1/2 gallon milk boxes and bottles are what I usually get anyway. I have about 10 microwaveable "food" items already stored. Some Ice cream when I am being good. (My arteries are clean according to the angio, just my valve is the problem....).Long lasting fruit is already stored in the refrigerator.
The dishes are washed, the laundry is done. My insurance (hospital inpatient and short term disability) has been notified. My work is ok with the time off, like it really matters if they are ok with it or not...
I know that I will not be driving for awhile.

I have my ham radio set up for easy access plus my phone and my cell chargers are all conveniently located. My Palm Pilot charger has been relocated. I picked up an electronic game with lots of extra batteries. I have a large pile of magazines to go

I do need to clear up some boxes so that I can get around better without (egad! Tripping!!!).

I have already put a hold on my mail, paid up all of my bills for the next 4 weeks, gave a copy of my passwords in a sealed envelope to a friend.

I have to pack up my "to-go" bags according to the "List of things to bring" found on this forum.

So I am slowly going through the list of things I need to do. What a list...